Sunday, October 18, 2009

31 for 21

Despite all of the things that I stress about with Colin having Down Syndrome, these are the moments that make it all better...
I had one of those moments today where I panicked. I get this feeling inside that Colin is missing out on something and it usually happens around the times Colin gets evaluated through one of the different teams we work with. Colin has been evaluated now for his 6 months IFSP meeting through Miss D (developmental therapist) and on Wednesday will be evaluated by Miss K (PT).

As I mentioned yesterday, Miss D said that Colin falls around a 4 month age for several areas of development even though he is turning 6 months this week. There are certain areas he is on track with and other areas where he obviously a little bit behind. I understand that Colin's condition will cause delays in certain areas, but my heart has a little bit of trouble with this sometimes.

I spoke with Miss K on the phone today and she was telling me some of the things she will be looking at on Wednesday when she is evaluating Colin. Both Miss D and Miss K have been just the people we need for Colin (as I explained yesterday) because they have ways of talking me off of the ledge (my friend Meredith's reference for me when I panic).

I still panicked today because I wonder if we do enough for Colin...There are so many different types of things we can do for him, which we are trying as hard as we can despite everything going on in our lives right now. I think sometimes that this is one of those things that makes it difficult to be a parent of a child with Down Syndrome. You want to do everything you possibly can because you know that things are going to be more difficult for them than other children. You try as hard as you can, but sometimes, you get scared because you don't know if it's enough...

...so you just keep trying...and Colin keeps fighting...and moments like these make it better...

3 comments:

Hector and Jennifer Varanini Sanchez said...

Thank goodness for moments like that when we feel the slight panic. I too have been feeling some panic lately. I think it's Joaquin's age (20 months) and I realize he will be 2 in just a few months and he is more like a one year old. And then I realize how much fun he is and how adorable he is and how happy we are and that numbers don't really mean anything.
Colin is just perfect the way he is! And you are doing a great job!

grandad said...

Thanks Sanchez's for the words I want to say also. Kelli has always been a "wart" (worrywart) about many things in her life, and I agree, don't let the numbers take away from the joy of Colin and what wonderful parents Kelli & Chris are. I think my grandson is perfect! Love to you all, grandad

Nana said...

I couldn't say it better myself!! He is the sweetest little boy, happy, and doing so many different things!! I told someone today that when I hold him my blood pressure must go down to 110/70! lol Love, Nana P.S. You two are the best parents!!!