Thursday, July 30, 2009
Sunday, July 26, 2009
He asked to finish the drive to D.C., but we were a little wary about that...
When we got to our hotel, Colin was so excited to try out Mommy and Daddy's king sized bed!
We had some family bonding time......and then the boys relaxed for a little while (including the giraffe!).After lunch, we went out on the town checking out the Smithsonian Museum of American History and the Washington Monument. Colin actually tolerated his hat, slept through the museum, and got a one-eyed glimpse of the Washington Monument.We went back to the hotel and Colin ate his dinner and got into his pajamas. We were going to go out to dinner and then walk around the rest of the monuments at night, but unfortunately, we only made it about 3 blocks before it started pouring and we had to sprint back to the hotel. Colin was the most protected, but still got a little wet. We ended up eating dinner at the hotel while Colin slept.
The next morning, we all slept in a little bit and had breakfast at the hotel. Colin could hardly contain himself when he found out we were going to the zoo!Colin ate his lunch in the panda's area, saw the baby gorilla (she was 3 months older than him), and slept again.
We had a great time at the zoo! Colin made it all the way home until he ate his dinner (around 6:30pm). He was so perfect and we had a great family weekend together!
Thursday, July 23, 2009
And here is Colin enjoying himself as he relaxes in the pool...
We had a great time! We are so happy to have a little water baby on our hands!
Monday, July 20, 2009
Colin is doing a new fun thing! Because of all of the love and kisses he gets on a daily basis, he is starting to mimick the kissing noise. It's adorable. We've gotten in the habit of having his zebra and leopard kiss him while we make the kissing noise. After you make the mwah sound, he does the same thing with his lips! I haven't been able to catch it yet, but I'm hoping to have a video of that very soon!
Today was a great 3 month birthday (aside from the fact that daddy wasn't there to spend it with us). Colin slept on the beach in the morning for at least an hour and a half, had a good feeding at lunch, and then played on the beach for a good hour in the afternoon. He was so happy and making lots of noises and smiling. We had a great time together! Here is Colin relaxing on the beach on his 3 month birthday...
Sunday, July 19, 2009
Now that we have had 2 visits from each therapist, we are starting to understand what it all entails and what Colin will be doing on a regular basis. Each therapist gives us activities to work on unti the next visit. So far Colin is doing great!
Friday, July 17, 2009
Second, he is doing so well holding lifting his head from the floor and the boppy pillow (we use the boppy pillow because it helps to "quiet" his legs...on the floor, he just wants to go somewhere!) He has gotten so much more tolerable of tummy time and loves to look around when lifting his head, especially so he can see his favorite toy, the snow leopard! This first picture is Colin on the floor...
...and this second picture is him lifting his head in the boppy pillow...
Third, Colin is ALSO doing well holding his head in a seated postion, which is one of his exercises the physical therapist gave us to work on. Colin can sit and look around while holding his head up pretty well. Here he is looking at his mommy while I hold him in a seated position. The physical therapist told us we should put one hand on his chest and the other on his back.
Colin is so happy a lot of the time and he is truly a joy to be around. He is smiling and making noises and is almost at the point of laughing. Here is our happy baby!
Unfortunately, I don't have a good picture or video of this (mostly because we were so shocked it was happening that we never thought to get the video camera!) but today, we had Colin in the boppy on his tummy on the couch. He was looking around and then started moving his legs a lot. He got himself up over the rounded side of the boppy, on to the couch, and rolled onto his back! I guess he showed us that he was done with tummy time! I tried to upload a video of our second attempt at video taping, but it won't work...
Colin is eating better for the most part (still a finicky eater) and sleeping like a champ (8-11 hours a night!). We are so proud of all of our little boy's accomplishments!!
Monday, July 13, 2009
Tonight, we were at the BlueClaws game visiting daddy with Aunt Kimmy. Colin was in his stroller slightly reclined when all of a sudden he tried to sit up! He got about halfway to a full sitting position! It was fun to see him try to do something new!
More updates coming soon!
Thursday, July 9, 2009
She felt that he has made some good improvements, however, she would like him to continue to really focus on tummy time. She would also like us to start a new activity by having Colin in a seated position supporting his chest and back so that he has to support his own head. Colin was awake and alert and did everything that was asked of him! He is such a good boy!
Monday, July 6, 2009
Colin did VERY well. His vision is perfect and he does not have any issues with more serious conditions such as cataracts and optic nerve problems that can be associated with Down Syndrome. Colin's vision is equivalent to any 2 month old so we are very happy (especially since both Chris' and my vision are terrible!)
Another specialist we can check off of the list because Colin is as healthy as can be!
In moments like these, my heart swells and I can't believe how much I love Colin. Yesterday I posted about how there are some frustrating moments associated with activities that Colin needs to be performing on a regular basis. However, days like today trump those insecurities. Colin had a GREAT day working on tummy time (he tolerated it many times throughout the day and was lifting his head so well!), playing with his toys (he loves his zebra and his newest toys that he is enjoying are the Winnie the Pooh Beanies), grabbing and reaching for toys, tracking objects, responding to voices, and just being a happy baby. Here are 2 videos from our play session this evening and I couldn't get over how happy Colin was...see for yourself!
In this second video, you can see how Colin is smiling for his mommy and then as soon as his daddy comes over, he resonds to his voice and face.
On a funny note, Colin's pediatrician recommended that we raise the mattress in his crib by placing a pillow underneath it. This suggestion was to help combat any reflux that may occur at night. Colin starts the night out in his crib on the "inclined" portion of the mattress like this:
Part way through the night, I fixed his position because he started to do this:
And finally, in the morning, he was like this:Even when he's sleeping, he never stops moving!!
Sunday, July 5, 2009
First I read Gifts: Mothers Reflect on How having Children with Down Syndrome has Enriched their Lives. This is a collection of stories from different mothers who all have children with Down Syndrome. I read through it in only 2 days and really enjoyed it because I felt a common understanding. It feels good to hear about other stories where I could relate. I just came across the Gifts website that I really enjoyed because of the different things the site offers, plus, it lists all different blogs to look at by families with children with Down Syndrome. I submitted this blog for approval so we'll see what happens! There are some really neat things on this website including video montages, blogs, and other links.
Next, I read Another Season by Gene Stallings, one of the great football coaches at Alabama. He writes about his 3rd child's diagnosis of Down Syndrome (which at that time was considered mongoloidism) and the ups and downs of raising Johnny. It was an interesting perspective because of the difference in time periods between then (60s) and now. It made me realize how fortunate we are to be afforded the oppportunity of early intervention, clinics and highly educated physicians who care for children with Down Syndrome in a much different manner. I found a video on Youtube that you can find here about Gene Stallings and his child Johnny.
Finally, I read Road Map to Holland: How I Found my Way Through My Son's First 2 Years with Down Syndrome by Jennifer Graf Groneberg. I really enjoyed this book because of how many things reminded me of my own situation and finding out my son had DS. By the end of the book, I realized that because of the fact Colin may have areas of development that are slower than other children, we will be more patient with him and will thoroughly enjoy when Colin reaches his goals and accomplishes simple tasks that may have otherwise been overlooked. We will have a greater appreciation of the things Colin will achieve throughout his development.
Finally, I am also reading Babies with Down Syndrome: A New Parents Guide. There is a lot of great information, but I am taking my time with it because I have found there is so much information that some times it's too much. I have learned to take one day at a time and the information provided for now is great. Sometimes, however, it's too much to look too far into the future...
Friday, July 3, 2009
Because of this, there are several things that are stressed at this point in Colin's development. One of the main areas that Chris and I are supposed to focus on is "tummy time" so that Colin strengthens his neck and back muscles. Children with Down Syndrome often have low muscle tone, which is why we have a physical therapist. As I mentioned in a previous entry, Colin's PT is excellent and she works really well with Colin. Unfortunately, after each session, we are given different tasks to work on in the 2 weeks between sessions. One thing that I have found really hard to deal with is the stress level associated with what we should be accomplishing in a day with Colin.
I feel that stress is one of the negative things associated with Colin's diagnosis. It's not so much the diagnosis itself, but rather, the things we should be accomplishing to make sure he is developing on "pace". He's picky about tummy time, however, he has done really well the past few days in lifting his head when he is on his tummy.
I'm reminded over and over again that he will accomplish these developmental milestones...it just might take him a little bit longer than others. However, as I have learned from one of the books I just read, these little milestones will mean so much to all of us because he will work really hard to accomplish them.