Monday, April 23, 2012

Our New Daily Routine

Now that Colin is attending a new school, we have a new routine that we are getting used to.  Colin's bus arrives at 7:45 am, so we need to get him up (which he usually is up early enough anyway), dressed, and having eaten (which is typically easy since all he eats is yogurt for breakfast these days) before the bus pulls up (which is Daddy's job since I am already gone).  His program runs from 8:20 until 11:20 in a self-contained preschool classroom.  I didn't spend a whole lot talking about the IEP process on here, but that's partially because I am still learning and it is really new to me (and pretty overwhelming).  I am anxious in terms of whether or not we have everything we need for him, but since it is an "open document", as I talk with his teacher and others, I am sure that things will change with time.  

In addition to his new routine, we have several college girls (all seniors) who will be getting him off of the bus every day.  They are all education majors in some way (2 special education and one guidance!) so we feel pretty happy with his caregivers.  They are all very nice girls and Colin has seemed to warm up so far (we weren't too concerned about that aspect anyway).  They are very thorough in their preparations for caring for him so that has been reassuring as well.  

...I especially wasn't worried when I received this picture today.


I am sure a lot of this has to do with the changes that are taking place, but Colin no longer looks like a baby to me, but rather, such a big boy!  Although he seems tiny in respect to a bus and school, his face is changing so much! In addition he is growing some freckles that are dotting his nose and cheeks so it's all changing so much!


However, with all of these changes and "aging", we are also facing some new challenges that have crept up on us in the whole transition period that were slightly pushed to the side while we were dealing with the emotions of the change.  Colin is becoming very independent and strong-willed and wants things done his way.  In the picture above, Colin is working on a new game he received for his birthday which he loved.  It's a "bug catching" game using magnets to catch the different bugs in the puzzle.  He picked up very quickly on how to get the bugs, however, when it came to putting the puzzle pieces back in, he would become very frustrated and decide he didn't want to do it anymore.  He would storm away and have a little fit, so Kailey and I would put the pieces back in.  However, he would be back when it came to what he wanted to do.  

The other aspect of his personality that is very strong-willed is in the walking department.  Now, in no way do I want you to think that I am complaining about this because that is not the case, but it is very challenging to walk with him because he wants to go where he wants.  For example, in the picture below, he does not want to walk where I tell him to, but rather where he wants, right down the middle of the road, so now we are trying to teach safety (BIG challenge).  It's tough because when I try and take his hand, his response is to sit down and use all 28 pounds of "low muscle tone" to his advantage.  


Finally, the last really big challenge we are facing is the fact that he is not playing very nicely with Kailey right now.  I know this is pretty typical of all siblings, but he is very rough with her and often ends up hurting her because of his aggressiveness.  I mean, will literally run at her, ambush her, and knock her over and essentially "wrestle" her.  However, she is NOT wrestling back and gets very upset (obviously).  Now, she often instigates in some way, but most of the time, his attacks are unwarranted.  I know in disciplining, repetition is key, but the roughness is concerning because I feel like I can't step out of the room without something happening lately.  We will separate him, put him in "time-out" (although we don't really say those words) and tell him what he is doing that hurts Kailey.  I know this will improve with time, but it's stressful to me because all I want is that great brother sister bond!

Sunday, April 22, 2012

3 Years Later

Tonight caps off a very emotional week for Chris and I as we were saying goodbye to therapists that were our family, celebrated Colin's last day at school, and sent him off to a brand new school where he is starting his new journey.  It's funny because while I still know how I felt in those moments after his birth when I first saw his beautiful eyes, and then a week later when his diagnosis was confirmed, it feels so long ago that we were ever sad about finding out that Colin had Down Syndrome.  


We are so proud of our little boy... Although we haven't had to face some of the challenges that other families have handled, it was not always an easy road because we just didn't know what the future would be like.  However, Colin's little life has brought so much to ours that it would be impossible to put into words now.  We have spent the past 3 years getting to know this beautiful little boy who is smart, independent, strong-willed, and most especially, loving.  


Today, we celebrated 3 years of Colin and I couldn't help but smile at all of the people that were here that loved and supported him and us.  He is so loved...


If I had only known then that instead of the future being so daunting, it would be so rewarding...


Happy Birthday to my sweet baby boy.  I love you more than words could ever say...


I look forward to what the future will bring us.  




Make a video - it's fun, easy and free!
www.onetruemedia.com


If the video doesn't work, please click here to watch it.

Friday, April 20, 2012

Colin's 1st Day of School

Today was Colin's first day of school and we are so happy at how the day went.  Although we had one tiny glitch because the bus did not have a car seat, it was even better because then we could take him to school and watch how happy he was to go to his new teacher, Miss Liz.  As soon as he went into her arms, he turned to us and said goodbye!

Although we are so filled with emotion at how everything is changing, it is all happy emotion as we are ready for what this next chapter brings.

Our little boy is growing up!



Make a video - it's fun, easy and free!
www.onetruemedia.com


If the video doesn't work, please click here to watch!

Thursday, April 19, 2012

It's Hard to Say Goodbye

Today has been a really hard day for me as I anticipated picking Colin up for the "last time" at school.  I have been really emotional thinking about it as we have been so thankful for the love and support that Colin's teachers have given him since he first started at 5 months old.  When we were first sending Colin, we had the normal fears that any parent would have dropping their child off for the first time, but we were also facing some anxiety over the fact that he had special "needs" that would require a little "extra".  I think one reason why we are so emotional is that the Growing Tree has done so much for Colin and we couldn't be more thankful.  

I was also overcome with emotion as I walked into his room and saw the amazing display of posters, gifts, letters, cards and love that was given to him today...

Thank you!! 

















When I looked at these pictures...all I saw was love!

Wednesday, April 18, 2012

She's Walking

It is NOW official...our little girl is walking!!  We were so excited as she was taking steps recently and she was pretty unsteady on her feet.  However, just this week, she started choosing to stand up and walk to certain places.  Today, she walked down the hallway at school!

We love you Kailey girl!!


Make a video - it's fun, easy and free!
www.onetruemedia.com


If the video doesn't show up, please click here for the link!

Tuesday, April 17, 2012

Saying Goodbye

I am having a really hard time this week as we say goodbye to people that we now call friends.  Colin is finishing up with Early Intervention and moving on to the next chapter in his life when he heads to preschool on Friday.  I have been thinking a lot this week as I watch Colin do all of these amazing things, feeling so proud of all that he has accomplished to get where he is now.  He certainly has had to work really hard to get here.  Most of the time I look at my little boy and the words Down Syndrome don't even cross my mind.  However, it is such a part of our life...


I can assure you that I have never cried as hard as I did the day that Colin's diagnosis was confirmed.  I could not believe that "it" was happening to us.  However, in all that we have seen Colin do in the past 3 years to grow and change, is the same kind of journey that we have been on ourselves as we have come to realize that "it" was one of the BEST things that could have ever happened to our family.  When our first therapist came to our home, we were so nervous about what all of this meant.  However, our therapists have become our friends, they have listened to our concerns, been a shoulder to cry on, and have pushed Colin to do the things they knew he was capable of doing, and more.  


With friends, you are never really saying goodbye, I know, but so much will be changing.  Every week, in a minimum of 5 hours, we have had these friends in our home working with Colin.  Words fail me in trying to find a way to say thank you, and I really could not even begin to tell you how grateful I am for this journey we are on, for our friends that we are now saying goodbye to, and for that one tiny little "extra" chromosome that Colin has.  

Parents with a child with special needs are often asked if we would "change" our child's diagnosis if we could...

...if you ask me, he is perfect the way he is.  

Monday, April 16, 2012

Flip Flop

Tonight as we were getting ready to go for a walk, I found a pair of flip flops of Colin that have been too big to wear since his 1st birthday.  When I put them on Colin, he was walking all over the place and sounded so funny because the flip flops were just smacking the floor.  I know it's kind of hard to hear, but made me laugh...


Pretty blues...

Comfy?