I am often asked when I see friends/family I haven't seen in awhile how Colin's feeding issues are going. I don't mind being asked because I have a pretty standard answer now and because right now, we are pretty easy going about the eating habits that Colin continues to have. My standard answer is "they're NOT going, he only eats 4 things, but, it's ok for now".
4 things Colin will eat:
- yogurt (seems to be only one kind he will eat in the original packaging)
- vanilla pudding
- cottage cheese with raspberries or strawberries (have to be cut up small though or he will spit out the chunks)
- vanilla ice cream
He seems to be hungrier now where he will eat multiple puddings or yogurts in a sitting and his bowl of cottage cheese is pretty hefty, but as hard as we try, we can not expand into other things. Occasionally he will seem interested in a pancake, but after making him one, will only eat 3 bites and if we are eating pizza, he always wants a few bites, but as soon as it cools down he spits it out because it feels funny.
When we were at our Trisomy 21 clinic visit at CHOP, the pediatrician was really great about everything that he is or is not doing, but she said that in the future, we may need to address the feeding issues again in terms of therapy. This is discouraging to me because we have gone this route and felt as though we did not get anywhere with him.
This is where the sensory issues come in. Since we spend a LOT of time on the beach, we often find Colin rubbing his face in the sand or eating it. When I say eating it, I mean, picking up (using his pincer grip) clumps of sand and eating it over and over and over again.
I changed a really poopy diaper this morning that consisted of clumps of sand everywhere. Try wiping mushy, sandy poop. The other day when I was on a new beach with a friend, there were several people that were staring (unfortunately, I can't help but notice) and two different people felt it was important to tell me (as if they didn't see me telling Colin no over and over again). The problem is, even if I tell him no and "remove him" from the situation, he finds another area to himself and starts eating again. It also depends on his mood, level of tiredness and temperment for that day. He is generally a sand eater when he is really tired.
Yep, my kid eats sand.
Although my attitude is nonchalant on the issue, it does really frustrates and discourages me. We have now been facing feeding issues for 3 years! It's one of those pesky things that just haven't gone away.