Monday, August 6, 2012

New Down Syndrome Diagnosis

Dear New parent who may have just received a prenatal diagnosis of Down Syndrome or who may have just had a precious new baby who happens to have that extra chromosome,

I made my title of this post what I did because I was hoping that if you were searching trying to find some new information, you would stumble upon this.  

I just wanted to let you know that I was in your shoes one day over three years ago when our little boy Colin was born with Down Syndrome.  I can assure you that I have never cried as hard or as much as I did that day when I learned that he came with an extra chromosome that might alter how he learned things or grew and developed.  I wanted to know why my husband and I were the ones that had to go through something like that.  

I know how scary this diagnosis may seem to you, but I wanted to let you know that your child with Down Syndrome will be MORE than you ever expected.  Sure, there are challenges that you may encounter along the way, but that's really something we all deal with as parents of any child.  

Your child with Down Syndrome WILL do all of the things that any typical child will do, it just might take a little bit longer.  

I can remember how long I waited for Colin to sit up for the first time, and then crawl, walk, and just today, I watched my little guy run around, dance with his sister, recite the ABCs, count to 10 and ask me if I was ok when I said ouch because I had an awful run.  

I know this is something you might not have ever expected, but your child will fill you with so much love and happiness and will remind you how valuable each life really is.  

There are lots of people and information out there that might try and discourage you, but I promise you, your baby with Down syndrome will be the best gift you ever received.  If you need to, stop back here and see what else Colin is doing these days, or, you can look back at the very beginning.  There are lots of other Mommies and daddies who also share their journeys that are listed on the side of my blog.  

With Lots of Love,
A Mommy who has a little boy with Down Syndrome (a really lucky Mommy)


Mommy to Austin & Jayden said...

Love this! Truly love this! I'm not sure if I ever told you this but we were told halfway through my last pregnancy that Jayden might have Down Syndrome. I refused the amnio because it didn't matter to me. I owe that strength [in part] to you & your family... watching you & Chris with Colin has been an inspiration. Whatever life had in store for us, I knew we could handle it and I knew you & Chris would be a valuable resource to us along the way. Thank you so much for sharing your journey! :)

Jenny said...

This was perfect Kelli :)

Anonymous said...

Beautiful blog, I am the grandma of a little boy w/Down Syndrome. I know my daughter feels the same way you do. Evan is 2 and I love that little boy so much and he has truly been a gift to our family. Thank you for sharing your feelings

Laura said...

I love this post Kelli! I know your words will bring hope to all those mamas expecting a little one with Ds!