Sunday, May 30, 2010
Carter's mommy, Heather, posted this on their blog today: He grew his wings very peacefully in his Mommy and Daddy's arms.
They have been such a strong and inspiring family on this journey...
If you have a moment, please stop by their page at http://www.teamcarterjay.com/ and send some love their way.
"Perhaps they are not the stars, but rather, openings in heaven where the light of our loved ones shine down upon us and let us know that they are ok."
- Eskimo Legend
Thursday, May 27, 2010
Anyway, my softball team at school was playing the South Jersey Group III state sectional champs close to Philly so we went to the game on the way out. Colin was in such a great mood and having fun in the shade at the game.
What you are about to see has never happened before when Chris or I have tried. He has done it for a VERY short period of time with Miss Kathy, but never for us...we were thrilled to say the least!!
What fun it was to watch that moment!
Tuesday, May 25, 2010
* PT (Physical Therapy): 2x per week
1st was Colin's Grandpa (Chris' Dad) on May 16th!
I love you very much!! I always have fun playing with you!
2nd was Colin's Nana (my mom) on May 20th (I was basically born on her birthday since I was born at midnight...but she got to pick which day she wanted for me and I ended up with my own birthday!)
Thanks for being such a great Nana. I love you SO much!
3rd will be Colin's Gammy's birthday (Chris' mom) on May 30th
I love you and can't wait to see you again soon! Thanks for loving me! Love,
My parents now have 4 college graduates!
Colin had his 1st school picnic on Saturday and he had so much fun playing with his friends! We sat with Tommy and Allison and I got to have adult conversations with their mommy's and daddy's (usually it's conversations at school with their kids...lol). Colin and Tommy were having fun on the swings! It was a beautiful day and reminded me how much I love Colin's school!
I thought I would end with something fun. We just dug this out (it was Daddy's "toy") and Colin loves it!
Monday, May 24, 2010
And this is Colin's "funny face" he is making these days to make everyone laugh! Just makes me smile!!
Tuesday, May 18, 2010
Happy Birthday to my dearest Kelli… my wife, the love of my life!!
Words can never fully express how much I love you, and how important you are to me and my life!! I love you – and Colin – with my entire being and our worlds are 100% better because you are a part of us.
Thank you for all that you do to keep us strong (and clean) and moving forward as a FAMILY…
I wish you the best birthday possible, and always know that Colin and I will be here to love and cherish you for all the days of your life.
Happy Birthday Beautiful!!!!
...and from Colin!
Happy Birthday Mommy…!!
Daddy and I were talking earlier and he mentioned that it might be a good idea to write you a note for your birthday, so here it goes…
You are the greatest Mommy ever! And I love you with all of my heart! Thank you so much for always being there for me and loving me – I promise to always return the favor!!
I hope you have a very Happy Birthday Mommy – you truly deserve it!
I love you always… Love, Colin
A few of Colin's blog friends need your thoughts and prayers right now...
Carter at Team Carter Jay is undergoing surgery tomorrow which will take about 8 hours and will have 3 different surgeons working on him while also getting some testing done. Please take a minute to visit their blog and let them know that you will be thinking about them and/or praying for them tomorrow!
Please continue to pray for Ella at Sweet Ella Grace as she is fighting her battle with leukemia. She had a successful surgery yesterday to put in a central line so that she will hopefully not have to be stuck with needles anymore for blood draws and administering medications.
One of the new adorable kids we have been following is Taylor at One Day at a Time. She just had heart surgery and also just contracted a stomach bug so she is back in the ICU for the time being so that they can get her electrolytes and some other things back on track. Taylor's Mommy Erin just wrote this on her recent blog post: "We're hanging in there..it's been a roller coaster. The Lord is our strength. (I am also blessed with a wonderful husband.) Love, Erin"We are thinking about all of you and sending our thoughts and prayers!! HUGS!
Monday, May 17, 2010
Prior to our great day yesterday with Adrienne and Bennett and the rest of their family, Colin was having a great time rolling around the living room floor tearing apart my magazines (despite the fact that he had MANY of his own toys around him) and dancing to the 80s and 90s stations we had on the TV. He is so funny when it comes to "dancing" to the songs...you can tell how much he loves music!
In this 1st video, watch what happens when the music slows down for a second in the song. He looks up at the TV as if to say "hey! what's happening to the beat?" and then as soon as it gets fast again, he starts bopping his head.
In the 2nd video, you can see that he is attempting the army crawl to get at my magazines! He is trying to do it more and more and it's funny because you will hear him grunting once and awhile trying to move.
Finally, in this last video, Colin is bopping away until the song switches and then he looks up to see when the next song is going to start. Mid-way through the video he is just staring at me and then he starts dancing again. He's so funny (and knows it too!)!
Sunday, May 16, 2010
Look at the cool dudes at the beach!
They quickly became friends! I love Colin's hand on Bennett's shoulder. It's like he is saying "meet my new friend!"
These lil' boys are such cuties!
They have a mutual love for paper (thanks for the adorable shirt Adrienne! I can't wait to have Colin model it!)
Adrienne and I with our boys...
Something must have been funny!
Colin and Bennett were so cute together and enjoyed their day at the beach together!
Thanks guys for a great day! It was so much fun meeting all of you!
Friday, May 14, 2010
Thursday, May 13, 2010
I know that all children have adjustment periods when it comes to change, especially with solid foods, switching to a different type of cup, milk, etc. Early on I just figured that it would just happen when we wanted to switch Colin to solids and when we first tried cereal, it did happen quickly. When we started with the pureed fruits and vegetables, he did very well. However, as we started to get into foods with more textures, our obvious difficulties began.
I think that one of the most frustrating things we have dealt with is the feeding issues. When we started with textured foods with Colin, he would blow raspberries because he wanted nothing to do with it. He always found a way to spit chunks out. We are still struggling with self feeding.
But....lately, there seems to be light shining through on this! Instead of seeing a big change happen all of a sudden, I have been noticing lots of little changes that have been taking place when it comes to feeding.
...slowly over time, the raspberries stopped.
...slowly, he is starting to accept "table foods" like mashed potatoes, sweet potatoes, small pieces of chicken or meat, crushed up veggies, cheese, fruit, etc. We still need to give baby food to make sure he is getting enough calories, but we are able to give less and less.
...slowly, with assistance he is putting things in his mouth like pretzel rods, and the spoon with some food on it (with LOTS of assistance), fudge pops (only a tiny bit...that he wants to be hand fed! ha!).
Instead of trying to see a big change, I look harder and I am seeing his small accomplishments. I remembered that I had to pull back a little bit and look a little deeper and voila! Things are changing in the right direction, just a little bit at a time!
Tuesday, May 11, 2010
Colin and Doug
Colin's new friend Evan! Isn't he a cutie!?
Part of what Chris' job entails is sending out press releases regarding Monmouth University athletic events (specifically, women's soccer, men's basketball, and baseball, plus a whole lot of other things). One of the guys that works for Chris came to the event and wrote the following that was sent out as a press release...thanks Eddy!
FOR IMMEDIATE RELEASE
May 10, 2010
PEER LEADERS AND FAMILY RESOURCE ASSOCIATES TEAM UP FOR ‘POSSABILITIES WALK’
Event, which featured a Play Day, was held on Kessler Field on Saturday
WEST LONG BRANCH, N.J. – The Monmouth University Department of Athletics Peer Leader Program and the Family Resource Associates (FRA) of Shrewsbury teamed up to help put on the ‘PossAbilities Walk’ and ‘Day of Sports Play with the Hawks’ at Kessler Field this past Saturday.
The event, which featured a mile walk with the student-athlete Peer Leaders and subsequent morning of different activities, such as soccer, kickball and an obstacle course, drew many local families and volunteers.
“We’re really excited because when we were approached by the Monmouth University student-athlete Peer Leaders we thought it was wonderful because we need ways to help bridge families together,” said Nancy Phalanukorn, Executive Director of the FRA. “When the children are young, they often only see each other in the home, and through events like this we want these families to come together and meet. All of the different Monmouth student-athletes came out and made this happen and it gives the kids a whole different feel.”
“Our goal through this event was to not only help the FRA raise money, but also to increase awareness both in the local community and on-campus,” said Associate Athletics Director for Sports Medicine and the Peer Leader advisor Doug Padron. “The student-athletes represented themselves and their teams very well at the event.”
The day began with a mile-long walk around the University’s E. Murray Todd Track at Kessler Field to help celebrate the abilities and accomplishments of children and adults with special needs in the community.
“It’s very rewarding to give back to the community and be able to put a smile on a kid’s face,” said Bryan Meredith, a junior on the men’s soccer team. “This event gives the kids a chance, at least for one day, to feel like a Division I athlete, and I am honored to be a part of it.”
After the walk, the student-athletes then broke into different stations, such as soccer, football, basketball, baseball, golf, tennis, kickball, on obstacle course and freeze dancing, and took turns playing with the kids.
“For me, I get to a play a sport and be a Division I athlete, but these kids don’t get to do that, to be a part of that is awesome,” said Olivia Salata, a sophomore on the lacrosse team. “We maybe take it for granted some days that we’re athletes, but I see these kids and I realize I have a great opportunity and I want them to have as much fun as I do every day.”
The FRA is a New Jersey non-profit agency located in Shrewsbury, helping children, adolescents and people of all ages with disAbilities to reach their fullest potential. FRA connects individuals to independence through modern therapies and advanced technology. Acknowledging the powerful influence of the family, we remain committed to them by offering both support and education.
FRA assists individuals of all ages who have developmental delays or disAbilities as well as acquired disAbilities. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services, along with family and sibling support groups.
For more information about the FRA, visit their website at http://frainc.org/.
Monday, May 10, 2010
To the right, you will find that I have added this button for Ella that will take you to her page when clicking on her picture.
We are thinking about you Ella and know that you are such a strong little girl. Many hugs from our family!
Sunday, May 9, 2010
...and Chris' mom who has always been there for him!
Colin is so lucky to have such wonderful grandmas!
Thursday, May 6, 2010
Colin always tries to make us laugh whether it be by making silly faces or making noises, etc. This definitely comes from his Daddy because he enjoys making people laugh as well. After Jen had picked Colin up the other day, the 3 of us were hanging out playing when Colin started doing things to make us laugh. He started giving the "look" and when we would start to giggle, he would laugh because he thought he was so funny!
You can see that here:
...and here: (also notice him saying Mamama!)
His little personality is so much fun to watch evolve! He really does crack us up!
Wednesday, May 5, 2010
...But he sure was glad to see his Daddy! I got some great pictures after they got home of their day of hooky!
I got this picture with a message that said "hurry home Mommy!"...
Apparently Colin told Daddy to send this one of Colin saying "hi!"Even though the day of hooky was fun...Daddy still made Colin work on self-feeding with a cookie...
However, it didn't go so well...(This is Colin actually pushing the cookie away)
Hope you guys had fun!
Tuesday, May 4, 2010
Monday, May 3, 2010
Sunday, May 2, 2010
...at least he enjoyed himself!