tag:blogger.com,1999:blog-3124741384965975431.post238898617686246665..comments2023-10-24T20:13:05.805-04:00Comments on Love for Colin: Look on the Bright Side...Kellihttp://www.blogger.com/profile/04758559804272645059noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3124741384965975431.post-72731147403016971592011-09-03T09:38:59.150-04:002011-09-03T09:38:59.150-04:00Thank you so much for sharing this info. My grand...Thank you so much for sharing this info. My grandson is 15 months and has ds. Our daughter has tried everything but Evan pretty much refuses to eat anything but babyfood. He is a real good eater however. He is also on miralax and something for reflux. If he doesn't get his miralax he is just like Colin and struggles to poop. Evan has an ot and she has given my daughter alot of different ideas but like Colin he hates all that messing with his mouth. He would cry all thru his meal. I told her that he is just going to associate eating w/pain and quit eating. So we just keep trying and someday, hopefully it will all come together.<br />Once again thank you for sharing your experiences, it is so helpful.<br />grandma rAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-90647586573590953672011-09-01T15:23:13.378-04:002011-09-01T15:23:13.378-04:00so happy you are feeling great!! I hope this helps...so happy you are feeling great!! I hope this helps you and the BIG guy! Maddie also has a slow digesting stomach...so they put her on Raglan not my favorite med..but it works good for Maddie...and she seems to get hungry more often know...we are also on prevacid...and it seems to be working ok...when we are having a tough go of eating...we do tv, playdough, markers, and books...I figure distraction is a win win for both of us!! keep up the great work! smilesAnonymoushttps://www.blogger.com/profile/06551567304485458524noreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-56139514379317881242011-09-01T13:59:01.266-04:002011-09-01T13:59:01.266-04:00My 5 year old nephew has low muscle tone - he does...My 5 year old nephew has low muscle tone - he does not have DS, but he is classified special needs because of the many other medical issues (including seizures, non-verbal), that he has. He will eat just about anything, but goes through phases of not eating as well - and often they have to give him an enema. (I cringe thinking about it). But what you explained makes complete sense and helps me understand what my nephew is going through. I am so glad you have some answers and some plans for Colin though. Soon enough maybe he'll just be a picky eater like his buddy Tommy, who right now would live on ice pops and cookies if I let him! And chips! We're dealing with the "exerting his independence" thing when it comes to food. Not as frustrating as what you have to deal with by any means, but I can relate to your concerns about making sure our toddlers are getting proper nutrition. Hang in there!Suzehttps://www.blogger.com/profile/17310043163074136313noreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-12412896944704274702011-09-01T13:23:09.655-04:002011-09-01T13:23:09.655-04:00Kelli,
My son will be 3 in a few days. He is tiny...Kelli,<br />My son will be 3 in a few days. He is tiny and does not have very many Ds issues, for lack of a better word. His pediatrician had me give him Miralax every day. If he is going good, I may not give him an entire dose and if he is not going good I give him a little extra. As long as I give him some every day, he does pretty good. Also, he loves Pediasure which the pediatrician wanted me to have him drink two or three bottles a day. His pediatrician said that he would get all the nutrients he needed from Pediasure. That helped me not to stress over what he was and was not eating. Some days he eats pretty good and some days he hardly eats at all. I would love to "talk" with you about this. I don't know if I will be any help but I can tell you about my son and see if any of what he is doing would help Colin. Your kids are so cute and I love your blog. My email is ldcrews72@yahoo.com if you would like to email me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-73398837779135877342011-09-01T11:54:42.247-04:002011-09-01T11:54:42.247-04:00Kelli, I'm so glad to hear that you had an enc...Kelli, I'm so glad to hear that you had an encouraging appointment. Micah's gut is so sensitive... he only gets 1/4 tsp of Miralax every night, but you do not want to skip it, nor do you want to give him more than that, LOL.Jenniehttps://www.blogger.com/profile/06617791426447246761noreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-67581737893286666352011-09-01T10:31:43.544-04:002011-09-01T10:31:43.544-04:00That makes SO much sense!!! I really hope that onc...That makes SO much sense!!! I really hope that once your new plan is in place and things are "moving" his eating will pick up! Yay for an informative, helpful appointment with people who are understanding and willing to help!!!Wrenhttps://www.blogger.com/profile/12859270873501744398noreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-71371169157893843812011-09-01T00:53:03.268-04:002011-09-01T00:53:03.268-04:00It all makes a lot of sense! So glad you got some...It all makes a lot of sense! So glad you got some answers and hope the new plan helps!The Paskins Familyhttps://www.blogger.com/profile/16546992836190261869noreply@blogger.comtag:blogger.com,1999:blog-3124741384965975431.post-86131382665297452352011-08-31T22:44:12.456-04:002011-08-31T22:44:12.456-04:00well, you KNOW i LOVE to hear any good foodie anec...well, you KNOW i LOVE to hear any good foodie anecdotes. biggs is down to only eating cheetos and sometimes warm yogurt right now. i could scream. but, he's also gained over a pound in the last two weeks. WHAT??? ugggh. colin's poop report definitely sounds similar to biggie's. his feeding therapist also sees a lot of bigg's vestibular issues coming into play when he's eating. that's been a CONSTANT hurdle for us, so we're investigating that further, too. starting this week, we'll be receiving 30 minutes of feeding therapy/week, so if we hear anything interesting we'll pass it along to our favorite PLEASE EAT penpals. xoxoxchhttps://www.blogger.com/profile/15976406973273184524noreply@blogger.com